Mailing List/Discussion Group

 


By joining the Alpha1-UK Mailing List you will be in contact with some 200 plus affected Alpha patients, their families and carers living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

If you would like to join us then please click Here Or, if you would like any further information then our Webmaster will be happy to help.

Group Rules of Conduct


Alpha-1 UK Support Group Badges


green and purple badge 1

The smart enamel badge, shown above can be obtained at a cost of £1.00 each + £0.50 p&p, the size of the badge is 16mm x 28mm (butterfly fastening) Click Here to place an order.

Disclaimer
The disclaimer provides that such medical information is merely information - not advice. If users need medical advice, they should consult a doctor or other appropriate medical professional. The disclaimer also provides that no warranties are give in relation to the medical information supplied on the website, and that no liability will accrue to the website owner or author in the event that a user suffers loss as a result of reliance upon the information.

alpha-1_kids



Alpha-1 Kids' is an American organisation whose mission is to provide information to parents of Alpha-1 infants, children, and adolescents about the problems and prognosis of the deficiency and to provide support, information, and data about its impact during childhood. Their organization was founded upon the diagnosis of an infant with Alpha-1 and the collaboration of family, friends, physicians, and business associates. 



alpha kids cartoon family
How do you handle the stress of knowing your child has Alpha-1?


How do I best support a healthy lifestyle for my 12 year-old daughter without scaring her or being overprotective?

To find out the answers to these questions and more

Click Here


a1ad parent guide front page ******New Guide******a1ad parent guide front page

Published by

Alpha-1 UK Support Group

Does Your Child Have

Alpha-1 Antitrypsin Deficiency

Now available for download

Click Here

Printed version now available

Contact: infoalpha1uk@googlemail.com

 

 

 

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