ADAPT

Mailing List/Discussion Group

By joining the Alpha1-UK Mailing List you will be in contact with some 200 plus affected Alpha patients, their families and carers living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

If you would like to join us then please click Here Or, if you would like any further information then our Webmaster will be happy to help.

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Disclaimer
The disclaimer provides that such medical information is merely information - not advice. If users need medical advice, they should consult a doctor or other appropriate medical professional. The disclaimer also provides that no warranties are give in relation to the medical information supplied on the website, and that no liability will accrue to the website owner or author in the event that a user suffers loss as a result of reliance upon the information.

What is ADAPT?

ADAPT (Antitrypsin Deficiency Assessment and Programme for Treatment) has been
established by research doctors who have an international reputation for their research
into the causes of emphysema, in collaboration with the pharmaceutical company Bayer.
ADAPT’s mission is to rapidly collect important information about how AAT deficiency
affects you and your family. In addition to being helpful to you in understanding the effects
of AAT deficiency on your lungs, this information will be critical to the design of clinical
studies of the effects of treatment of the disease.

Finally, ADAPT will provide an information service to you and your relatives to explain how

AAT deficiency influences you, your health, and your lifestyle.

ADAPT News is an occasional booklet which gives information about the disease,
research and treatment. Back copies are available from the ADAPT office, contact details below.

ADAPT Newsletter November 2011 Issue Now Available Here

The Patient Community

Being a patient under ADAPT means that you meet other patients. There is an alpha-1

“community” in which patients support each other in friendship, sharing information,

supporting research and so on.

Further information can be obtained:

Robert A. Stockley MD, D.Sc ., F.R.C.P.
Professor in Medicine

_________________________________________________________________________

Mrs Rebecca Bray
ADAPT Project Co-ordinator

_________________________________________________________________________

Dr Anita Pye
ADAPT Clinical Trials Co-ordinator

_________________________________________________________________________

Please Note: We have moved.

New address and contact details from 20th November, 2010 as follows:

Lung Function and Sleep Department
ADAPT Office
Queen Elizabeth Hospital Birmingham
Mindelsohn Way
Edgbaston
Birmingham
B15 2WB

Telephone No for ADAPT Co-ordinator: 0121 371 3885

Telephone No for Trials Co-ordinator: 0121 371 3886

Fax No: 0121 371 3887

Hospital switchboad: (0121) 627 2000

Site map of the new hospital available as download at bottom of page.

ADAPT patients will need to go to "Main Entrance Patient/Visitor (non- A&E & CDU)"

highlighted on the map in green and use the car parks nearby.

_____________________________________________________________________

Alpha-1-Antitrypsin Deficiency finger-prick testing kits are available free of charge from:-

Mrs. Rebecca Bray
Lung Function and Sleep Department
ADAPT Office
Queen Elizabeth Hospital Birmingham
Mindelsohn Way
Edgbaston
Birmingham
B15 2WB

Tel no: 0121 371 3885

Email: Rebecca Bray

The details required for the kit to be sent out are your name, address and date of birth and
the name and address of your general practitioner.

Attachments:
File	Description	File size
Adapt Newsletter_Nov 2011_web.pdf	ADAPT NEWSLETTER NOV2011	1171 Kb
ADAPT QEHB Site Map.pdf	ADAPT Queen Elizabeth Hospital Birmingham Site Map	253 Kb

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