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What is ADAPT?
ADAPT (Antitrypsin Deficiency Assessment and Programme for Treatment) has been established by research doctors who have an international reputation for their research into the causes of emphysema, in collaboration with the pharmaceutical company Bayer.
ADAPT’s mission is to collect information about how AAT deficiency affects you and your family. As well as being helpful to you in understanding the effects of AAT deficiency on your lungs, this information will be critical to the design of clinical studies.
ADAPT News is an occasional booklet which gives information about the disease, research and treatment. Back copies are available from the ADAPT office, contact details below.
The Patient Community
Being a patient under ADAPT means that you meet other patients. There is an alpha-1 “community” in which patients support each other in friendship, sharing information, supporting research and so on.
Further information can be obtained:
Robert A. Stockley MD, D.Sc ., F.R.C.P. Professor in Medicine
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Mrs Rebecca Bray Project Co-ordinator
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Dr Anita Pye Clinical Trials Co-ordinator
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ADAPT Project First Floor, Nuffield House Queen Elizabeth Hospital BIRMINGHAM B15 2TH
Telephone: 0121-697-8257 Fax: 0121-697- 8256
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Alpha-1-Antitrypsin Deficiency finger-prick testing kits are available free of charge from:-
Mrs. Rebecca Bray ADAPT Project Co-ordinator 1st Floor Nuffield House Queen Elizabeth Hospital Birmingham. B15 2TH UK
Tel no: 0121 697 8257
Email: Rebecca Bray
The details required for the kit to be sent out are your name, address and date of birth and the name and address of your general practitioner.
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