Mailing List

By joining the Alpha1-UK Mailing List you will be in contact with some 140 affected Alpha patients, and their families, living throughout the UK. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have. If you would like to join us then please click here. Or, if you would like any further information then our Webmaster will be happy to help

Disclaimer

The information provided is for educational purposes only and is not intended nor implied to be a substitute for professional medical advice.
Always consult your own physician or healthcare provider with any questions you may have regarding a medical condition.

10K run in memory of my brother - Kelvin Buck

A WOMAN from Beverley is preparing for a 10K challenge to raise money for a charity close to her heart.

Karen O'Connor, 54, will take part in Jane Tomlinson's Hull 10K in memory of her brother, Kelvin Buck, 52, of Beverley, who died in October last year.

Kelvin, who had chest problems, was diagnosed with alpha-1 antitrypsin deficiency, an inherited disorder that can cause lung and liver disease, in 1993.

He underwent a double lung transplant at Newcastle's Freeman Hospital in April last year.

Although the operation was initially successfully, Kelvin then suffered chronic rejection. Click here to read more

Campaign targets Notts lung disease hotspots

This is a campaign that one of our members Joe Lyons has been involved with, keep up the good work Joe: -

HEALTH experts are targeting the areas of Notts worst affected by lung disease as part of a new campaign. Love Your Lungs is being launched today in the county to tackle its high rates of chronic obstructive pulmonary disease (COPD). It is the fifth biggest killer in the UK and includes debilitating lung diseases such as chronic bronchitis and emphysema. New research by Nottingham's business information and credit data giant, Experian, has revealed the areas where risk of COPD is highest. It shows the majority are in north Notts – though there are also hotspots in Arnold and Gamston. Click Here to read more.

Kamada Announces Enrollment Of First Patients In Its Pivotal Study For Inhaled AAT In Europe

Kamada, a bio-pharmaceutical company engaged in the development, manufacturing and marketing of specialty life-saving therapeutics, announced today that it has enrolled the first patient into its pivotal clinical trial with its new breakthrough compound of inhaled alpha-1 antitrypsin (AAT) delivered by an Investigational eFlow Nebulizer System (PARI Pharma GmbH), in patients with alpha-1 antitrypsin deficiency. Click Here to read more.


Oxygen in aeroplanes should be free as air

BY LAURA HANNAM ( Milton Keynes News )

 

A man who suffers from lung disease is campaigning to stop airlines charging passengers who need to use oxygen when travelling.
John Mugford, 58, from Emerson Valley, has enlisted the help of local
MP Dr Phyllis Starkey to petition airline companies to stop preventing
passengers from bringing their own oxygen cylinders on to planes and
charging hundreds of pounds extra for them to use the oxygen that the
airline provides. To read full story Click Here