| Alpha Facts |
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| BBC Health - Alpha1 Antitrypsin Deficiency |
What is alpha-1 antitrypsin deficiency/Symptoms/Causes and risk factors/Treatment and recovery |
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| Patient UK |
Comprehensive health information as provided by GPs and nurses to patients during consultations. |
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| WebMD |
Leading source for trustworthy and timely health and medical news and information. |
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| Alpha Lung |
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| The British Lung Foundation |
The British Lung Foundation is the only UK charity working for everyone affected by lung disease. We focus our resources on providing support for people affected by lung disease today; and work in a variety of ways, including funding world-class research, to bring about positive change, to improve treatment, care and support for people affected by lung disease now and in the future. |
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| The British Thoracic Society |
The British Thoracic Society is a registered charity who's objective is to improve the standards of care of people who have respiratory diseases. |
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| Lovexair |
A window of support, to a society confronted by the problems of a growing world-wide population of COPD sufferers. |
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| Second Wind |
Second Wind Lung Transplant Association, Inc. was formed on April 17, 1995, by a small group of people who wanted to provide information about lung transplantation to others. |
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| Alpha Liver |
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British Liver Trust |
The British Liver Trust is the national charity working to reduce the impact of liver disease in the UK through support, information and research.
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| Alpha Children |
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| Children's Liver Disease Foundation |
National charity based in Birmingham who for nearly 30 years have been fighting childhood liver disease. |
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| Children's Liver Disease Foundation -Focus |
National charity based in Birmingham who for nearly 30 years have been fighting childhood liver disease. |
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| Alpha-1 Kids |
Providing information to parents of Alpha-1 infants, children, and adolescents about the problems and prognosis of the deficiency and to providing support, information, and data about its impact during childhood.
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| Organisations |
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| Alpha-1 Advocacy Alliance |
An organisation who's mission is to improve the health and well being of those affected by Alpha-1 through support to patients, educating healthcare professionals and advancing public policy for the Alpha-1 Community. |
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| Alpha-1 Association |
A member-based not-for-profit organization dedicated to identifying those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research. |
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| Alpha-1 Association of Australia |
An organisation dedicated to the help and support of Australians who are affected by and interested in Alpha-1 Antitrypsin Deficiency (A1AD) |
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| Alpha-1 Canada |
An organisation who's mission is to provide information, education and support to Canadians affected by alpha-1 antitrypsin deficiency. |
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| Alpha-1 Foundation |
Dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency. |
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EFA |
The European Federation of Allergy and Airways Diseases Patients Associations (EFA) is a European network of allergy, asthma and COPD patient organizations that was founded in 1991 in Stockholm, Sweden.
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EFFORTS |
A nonprofit organisation dedicated to the support of individuals who suffer with Emphysema, a Chronic Obstructive Pulmonary Disease (COPD).
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| Mesothelioma |
Pleural mesothelioma is by far the most prevalent form of mesothelioma. According to the American Cancer Society, three-quarters of all mesothelioma cases are pleural. Pleuralmesothelioma.com offers the most comprehensive and current information on Mesothelioma Life Expectancy, asbestos exposure, and mesothelioma. |
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Mesothelioma |
Mesothelioma is a cancer of the lining of the lung and is caused by exposure to asbestos. At some point, nearly everyone has been exposed to asbestos. Because of the lengthy latent periods, mesothelioma and other asbestos-related diseases can remain undetected for over a decade before the patient shows any signs of illness. Someone can be diagnosed with mesothelioma many years after their exposure. For more information on asbestos and mesothelioma, please visit Mesothelioma Web.
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| RARE DISEASE |
An alliance of key stakeholders brought together to develop strategic planning for rare diseases in the UK. |
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| Spiderspun |
Created by an Alpha-1 patient Spiderspun was officially online October 18th, 2000. Noreen was about to have a lung surgery on October 27th, 2000 due to a genetic deficiency called Alpha-1-Antitrypsin Deficiency. Thus, she designed the web site to begin an Alpha-1 blog. |
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| Smile Rehab |
Smile Rehab Ltd is one of the UK 's leading specialists in the manufacture and supply of mobility, communication and respiratory devices for children and adults with special needs. See their TopTips for travelling with a Portable Oxygen Concentrator |
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Useful Links
