Mailing List

By joining the Alpha1-UK Mailing List you will be in contact with some 160 affected Alpha patients, and their families, living throughout the UK. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have. If you would like to join us then please click Here Or, if you would like any further information then our Webmaster will be happy to help.

New Alpha1 Support Group Badges
Now Available

green and purple badge 1

The smart enamel badge, shown above can be obtained from John Doyle at a cost of £1.00 each + £1.50 p&p (for up to 30 badges) The size of the badge is 16mm x 28mm (butterfly fastening) 

Click Here to place an order.


Disclaimer

The information provided is for educational purposes only and is not intended nor implied to be a substitute for professional medical advice.Always consult your own physician or healthcare provider with any questions you may have regarding a medical condition.

Useful Documents

You may find the documents below useful. To open the files you will need Adobe Reader, which can be found here free of charge.


A Guide to Understanding Alpha 1 Antitrypsin Deficiency (A1AD)

Most people, when given a diagnosis of A1AD, have no understanding of what that means. It can be a difficult and worrying time for all concerned, especially when doctors just send you away without explaining how it might affect you or your family. We hope this guide will help to answer some of the many questions you need to ask.



Oxygen Use In The UK

This document sets out all the new rules and regulations concering O2 use from May 2007 2006.

 

Guidelines For Treating Alpha-1

This document is the current advice given about Alpha-1 and was compiled by The American Thoracic Society and The European Respiratory Society. It is very technical but still worth consulting in times of insomnia!

 

HOOF Form For Home O2

This is a PDF version of the order form your GP needs to fill in if you are assessed as needing long term O2 therapy (LTOT). The GP only needs to fill in one of these once, or if you are going on holiday.