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email forum - by joining the group e-mail forum you will be in contact with Alpha patients, their families, carers and friends living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

Alpha-1 Parliamentary Seminar - We Need You!

The Alpha-1 Alliance would like to invite you to the above seminar on Alpha-1 in Parliament. The panel of speakers will include leading clinicians, commissioners, Alpha-1 patient representatives and supporting MPs. At the event we will discuss the current level of care for Alpha-1 patients as well as the new commissioning process for Highly Specialised Services, which is currently developed by NHS England.


Parliamentary Seminar
Alpha-1 antitrypsin deficiency
Tuesday 10th December 2013
15:00 - 17:00
Attlee Suite, Portcullis House
Westminster, London

The Alpha-1 Alliance would like to invite you to the above seminar on Alpha-1 in Parliament. The panel of speakers will include leading clinicians, commissioners, Alpha-1 patient representatives and supporting MPs. At the event we will discuss the current level of care for Alpha-1 patients as well as the new commissioning process for Highly Specialised Services, which is currently developed by NHS England.

We will also launch an Alpha-1 policy report that was informed by a patient survey and present and discuss its recommendations for better Alpha-1 services.   

We will continue the discussions over tea and coffee after the event.

Please come and join us to support our campaign! Carers, family members and supports are also welcome at the event!

If you would like to attend, please register with the Alpha-1 Alliance’s Secretariat at 
info@alpha-1-alliance.org.uk  020 3021 1624
Attendees need to be registered in order to get access to Parliament.   


Thank you for your support!



For more information about the Alpha-1 Alliance


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