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email forum - by joining the group e-mail forum you will be in contact with Alpha patients, their families, carers and friends living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

ADAPT

What is ADAPT?

ADAPT (Antitrypsin Deficiency Assessment and Programme for Treatment) has been established by research doctors who have an international reputation for their research into the causes of emphysema, in collaboration with the pharmaceutical company Bayer.
ADAPT’s mission is to rapidly collect important information about how AAT deficiency affects you and your family. In addition to being helpful to you in understanding the effects of AAT deficiency on your lungs, this information will be critical to the design of clinical studies of the effects of treatment of the disease.

Finally, ADAPT will provide an information service to you and your relatives to explain how AAT deficiency influences you, your health, and your lifestyle.

ADAPT News
is an occasional booklet which gives information about the disease, research and treatment. Back copies are available from the ADAPT office, contact details below.

ADAPT Newsletter November 2011 Issue
Now Available



The Patient Community
 
Being a patient under ADAPT means that you meet other patients. There is an alpha-1 “community” in which patients support each other in friendship, sharing information,supporting research and so on.

Further information can be obtained:

Robert A. Stockley MD, D.Sc ., F.R.C.P.
Professor in Medicine

Mrs Rebecca Bray
ADAPT Project Co-ordinator

Dr Anita Pye
ADAPT Clinical Trials Co-ordinator

Please Note: We have moved.

New address and contact details from 20th November, 2010 as follows:

ADAPT Project
Lung Function and Sleep Department
Outpatient,Ground Floor
Queen Elizabeth Hospital Birmingham
Mindelsohn Way
Edgbaston
Birmingham
B15 2WB

Telephone No for ADAPT Co-ordinator: 0121 371 3885

Telephone No for Trials Co-ordinator: 0121 371 3886

Fax No: 0121 371 3887

Hospital switchboad: (0121) 627 2000

Site map of the new hospital available as download at bottom of page.

ADAPT patients will need to go to "Main Entrance Patient/Visitor (non- A&E & CDU)"

highlighted on the map in green and use the car parks nearby.


Alpha-1-Antitrypsin Deficiency finger-prick testing kits are available
free of charge from:-

Mrs. Rebecca Bray
ADAPT Project
Lung Function and Sleep Department
Outpatient,Ground Floor
Queen Elizabeth Hospital Birmingham
Mindelsohn Way
Edgbaston
Birmingham
B15 2WB

Tel no: 0121 371 3885

Email: Rebecca Bray

The details required for the kit to be sent out are your name, address and date of birth and the name and address of your general practitioner.

Attachments:
Download this file (ADAPT NEWSLETTER NOV 2011.pdf)ADAPT NEWSLETTER NOV 2011.pdf[ADAPT NEWSLETTER NOV 2011]1171 kB
Download this file (ADAPT QEHB SITE MAP.pdf)ADAPT QEHB SITE MAP.pdf[ADAPT QEHB SITE MAP ]253 kB

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