Mailing List/Discussion Group

By joining the Alpha1-UK Mailing List you will be in contact with some 200 plus affected Alpha patients, their families and carers living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

If you would like to join us then please click Here Or, if you would like any further information then our Webmaster will be happy to help.

Group Rules of Conduct

Alpha-1 UK Support Group Badges

The smart enamel badge, shown above can be obtained at a cost of £1.00 each + £0.50 p&p, the size of the badge is 16mm x 28mm (butterfly fastening) Click Here to place an order.

Disclaimer
The disclaimer provides that such medical information is merely information - not advice. If users need medical advice, they should consult a doctor or other appropriate medical professional. The disclaimer also provides that no warranties are give in relation to the medical information supplied on the website, and that no liability will accrue to the website owner or author in the event that a user suffers loss as a result of reliance upon the information.

Alpha-1 UK Support Group

Welcome to the alpha-1 uk support group

Supporting Alphas, their families, carers and friends since 1997

Patron: Professor R.A.Stockley MD, D.Sc ., F.R.C.P.

Welcome to the website of alpha-1 UK support group run by alphas for

alphas, and backed by the UK's leading medical experts in the field of:

Alpha-1 Antitrypsin Deficiency

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Support from fellow Alphas

Understand what being an Alpha means to you

Patients, partners, parents and relatives welcome

Promoting the interests of Alphas in the UK

Offering advice and practical help

Relaying news and helpful information

Treatment and clinical trial reports and articles

We are a patient group formed by those diagnosed with the genetic condition Alpha-1 Antitrypsin Deficiency, to help and advise fellow sufferers. If you think we can help you or your family, then please join our Mailing List

Alpha-1-Antitrypsin Deficiency finger-prick testing kits are available
free of charge

Click Here for further information

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ADAPT Newsletter November 2011 Issue Now Available Here

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*******Breaking News*******

Repaired Stem Cells Grow New Working Liver Cells

UK scientists took stem cells made from the skin cells of patients with an inherited liver disease called alpha1-antitrypsin deficiency, used "molecular scissors" to effect a "clean" repair of the gene mutation that causes the disease, and showed, both in test tubes and in mice, that the gene worked correctly when the stem cells made new cells that were almost like liver cells. Nature reports the study, led by researchers from the Wellcome Trust Sanger Institute and the University of Cambridge, in its 12 October online issue.

The study is significant because it uses a tidy method that leaves no remnants of the repair mechanism behind, which could otherwise introduce unacceptable risks in a clinical setting: thus it is a new way of making a "clean correction" to the defect gene.

Read Full Article Here

13th October 2011

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**********New Children's Guide**********

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