email forum - by joining the group e-mail forum you will be in contact with Alpha patients, their families, carers and friends living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.


Alpha-1 Antitrypsin Deficiency

Alpha-1 Antitrypsin Deficiency also known as Alpha-1, A1AD or AATD is an inherited, genetic condition that is passed on from generation to generation. As the name suggests it is a deficiency of alpha-1 antitrypsin (AAT) in the bloodstream. AAT is an enzyme (sometimes called a protein) produced in the liver to help protect the tissues of the body during infections. The low level of AAT in the blood occurs because the AAT is abnormal and cannot be released from the liver at the normal rate. This leads to a build up of abnormal AAT in the liver that can cause liver disease and a decrease of AAT in the blood that can lead to lung disease.

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To request a free Alpha-1 Information Pack or Booklets and Posters for your GP Surgery and Hospital please e-mail us with your full name and address. Healthcare Professionals welcome.



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e-petition

Alpha-1 Alliance (UK) launches e-petition
to the Department of Health calling on the Government to nationally commission a specialised service for Alpha-1 so that patients can get the vital treatment and support they need. Please show your support for the campaign by signing our e-petition, then spread the word by forwarding the petition to friends, family and work colleagues. Don’t forget to post the petition on Facebook and Twitter too, if you use them.

50th Anniversary Alpha-1 Origins and Discovery

Alpha-1 antitrypsin deficiency (AAT) was first reported in 1963 by Carl-Bertil Laurell and Sten Eriksson who discovered a link between low plasma serum levels of AAT and symptoms of pulmonary emphysema. 2013 marks the 50th Anniversary so follow us on the journey from the Origins to the Discovery.


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Latest News 17/05/2013

Daddy's Duck Race Wish Comes True

Two young brothers from Chorley will be hosting a charity duck race in memory of their late father, who passed away four years ago.  Bobby Goode, aged seven, and  [ ... ]

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Latest News 19/04/2013

The Alpha-1 Project Announces $150,000 Commission to Expand Induced Pluripotent Stem Cell Lines Created from Alpha-1 Patients

The Alpha-1 Project (TAP) today announced a $150,000 commission to Darrell  [ ... ]

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Latest News 12/04/2013

Press release from Alpha-1 Alliance - Future of augmentation therapy in the UK

The Alpha-1 Alliance is campaigning for the establishment of a highly specialised service for Alpha-1 patients within the  [ ... ]

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Latest News 09/04/2013

Alpha-1 Patient Congress to stream live on web

Live streaming of the 4th International Alpha-1 Patient Congress will begin at 9 a.m. local Barcelona time (3 a.m. EST), from the Hilton Diagonal Del Mar [ ... ]

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Latest News 30/03/2013

Meet Four Alphas From Around the World

The stories of John (from the United Kingdom), Jenni (from Australia), Hans (from Sweden) and Caroline (from Belgium) are unique, but they also share many sim [ ... ]

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Latest News 29/03/2013

Four fabulous nurses from Southend Hospital will be hiking Hadrian's Wall (84 miles in 6 days) in June raising funds for charities

Leigh Curtis, one of the 4 nurses whose husband suffers with Alp [ ... ]

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50th Anniversary
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