email forum - by joining the group e-mail forum you will be in contact with Alpha patients, their families, carers and friends living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

What is Alpha-1 Antitrypsin Deficiency?

Alpha-1 Antitrypsin Deficiency also known as Alpha-1, A1AD or AATD is an inherited, genetic condition that is passed on from generation to generation. As the name suggests it is a deficiency of alpha-1 antitrypsin (AAT) in the bloodstream. AAT is an enzyme produced in the liver to help protect the tissues of the body during infections. The low level of AAT in the blood occurs because the AAT is abnormal and cannot be released from the liver at the normal rate. This leads to a build up of abnormal AAT in the liver that can cause liver disease and a decrease of AAT in the blood that can lead to lung disease.


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Latest News

Alpha-1 Alliance meets Andrew Lansley MP to discus...
25 Mar 2014 20:40

Alpha-1 Alliance meets Andrew Lansley MP to discuss need for a national service The Alpha-1 Alliance met with Andrew Lansley MP, former Secretary of State for Health, to discuss the need for the es [ ... ]

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Minister answers Parliamentary Questions on Alpha-...
05 Apr 2014 20:07

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Alpha-1 Alliance in discussions with NHS England
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Support Group Meetings
20 Feb 2014 20:14

Alpha-1 Awareness UK will be hosting two events this year:-
Alpha-1 Informal Lunch, Aztec Hotel & Spa, Aztec West, Bristol 
4TS - SATURDAY APRIL 5th 2014 - 11am-3pm
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Mum-of-Five Lindsay Jarrett Tells of Health Battle
08 Feb 2014 20:11

Mum-of-five tells of health battle and why she's determined to live life to full after being given devastating news six years ago
Lindsay Jarrett is fundraising on JustGiving for Alpha-1 UK Support G [ ... ]

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Alpha-1 Alliance Joins Rare Disease UK
23 Jan 2014 20:02

The Alpha-1 Alliance has become a member of Rare Disease UK (RDUK). RDUK is the national alliance for people with rare diseases and their supporters. RDUK’s objective is to campaign for high quality [ ... ]

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