A call to action for Alpha-1 patients
The Alpha-1 Alliance needs you
We are entering a critical stage in our campaign and we need your help. It is vital that Ministers understand the importance of making a positive recommendation for the establishment of a specialised NHS England service for Alpha-1 to ensure better access to care.
The Alpha-1 Alliance has produced a letter template for you to fill in and send to your local MP, asking them to urge the Secretary of State for Health to realise the importance of improving care for Alpha-1 patients. We need as many of you as possible to take action in order to make this change happen.
Please contact the Alliance’s Secretariat with your email address and telephone number at:
email@example.com / 020 3021 1624.
We will provide you with the template letter and further background information once we receive your contact details.
We look forward to hearing from you.
Source: Alpha-1 Alliance 28/11/2014
Cabinet Health Secretary commits to improving care for Alpha-1 patients in Scotland
In a landmark seminar at the Scottish Parliament last week, the Alpha-1 Alliance moved one step closer to achieving its goal of improving health services for patients of the condition in Scotland – with a personal commitment to improve care for the rare disease from Health Secretary Alex Neil MSP.
The event, which was chaired by Dr Aileen McLeod MSP, served as a platform to discuss the Alliance’s policy report on the unmet medical need of Alpha-1 patients in Scotland – which was informed by the findings of the Alliance’s 2013 survey of Scottish Alpha-1 patients, relatives and carers.
Members of the Alpha-1 patient community, specialists clinicians, government officials and politicians came together to talk about what steps can practically be taken to establish a nationally commissioned specialist service for Alpha-1. The Alliance was pleased to welcome a number of MSPs to the event, including Conservative spokesman for Health and Community Care Nanette Milne, Linda Fabiani, Iain Gray, Christian Allard and Minister for Children and Young People Aileen Campbell.Source: Alpha-1 Alliance 24/11/2014