In response to these findings, one of the report’s main recommendations is the creation of a multi-disciplinary nationally commissioned specialist service for Alpha-1. This service, the report concludes, would be instrumental in ensuring uniformly high levels of care for Scottish Alpha-1 patients.
The publication of this report constitutes a major milestone in the Alliance’s campaign to raise awareness of Alpha-1 and the unmet medical need that patients experience, and to improve care and treatment for the condition in Scotland.
The Alliance will be discussing the report’s findings and recommendations with those affected by the disease, politicians and senior Alpha-1 clinicians at a seminar at the Scottish Parliament on the 19th of November 2014.
The details of the parliamentary seminar are as follows:
Wednesday 19th November, 6-8pm
The Fleming Room
The Scottish Parliament
Edinburgh EH99 1SP