Alpha-1 Alliance’s application for highly specialised Alpha-1 service endorsed by Clinical Reference Group
The Alpha-1 Alliance is delighted to announce that the Clinical Reference Group (CRG) for Specialised Respiratory Diseases has formally endorsed the Alpha-1 Alliance’s application for the establishment a highly specialised service for Alpha-1 Antitrypsin Deficiency in England. The CRG for Specialised Respiratory Disease is a committee of senior respiratory clinicians, who advise NHS England on the commissioning of new specialised services. Receiving the CRG’s endorsement for our application is an important milestone in establishing the proposed specialised service. The Alliance’s application will now enter the next steps within NHS England’s formal commissioning review with strong support of the wider clinical community.
Karen North, Trustee of the Alpha-1 UK Support Group and Executive Member of the Alpha-1 Alliance, commented: “Receiving the CRG’s endorsement means that the Alliance’s application has now crossed the first big hurdle on the path to a national specialised service for Alpha-1.We will continue to engage with NHS England officials in the coming months to support the review of our application by the different commissioning committees.”
Source: Alpha-1 Alliance 17/07/2014
Alpha-1 Alliance secures wide clinical expert support for a national service at Advisory Board
Yesterday, the Alpha-1 Alliance brought together clinical experts specialising in Alpha-1 and Alpha-1 patient group representatives to discuss the desired service specifications for a future national highly specialised service for patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) in England. The objective of the meeting was to collate the views of expert NHS clinicians in Alpha-1 and patient representatives on how access to specialist, coordinated and multidisciplinary care can be improved and made more equitable across the country.
Source: Alpha-1 Alliance 27/06/2014