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email forum - by joining the group e-mail forum you will be in contact with Alpha patients, their families, carers and friends living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

What is Alpha-1 Antitrypsin Deficiency?

Alpha-1 Antitrypsin Deficiency also known as Alpha-1, A1AD or AATD is an inherited, genetic condition that is passed on from generation to generation. As the name suggests it is a deficiency of alpha-1 antitrypsin (AAT) in the bloodstream. AAT is an enzyme produced in the liver to help protect the tissues of the body during infections. The low level of AAT in the blood occurs because the AAT is abnormal and cannot be released from the liver at the normal rate. This leads to a build up of abnormal AAT in the liver that can cause liver disease and a decrease of AAT in the blood that can lead to lung disease.

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Alpha-1 UK Support Group
13th Annual Social Gathering and Information Day
Bentley Hotel Leisure Club and Spa
Newark Road, South Hykeham, Lincoln LN6 9NH
Saturday 20th September 2014

Our Annual Social Gathering and Information Day which this year is in the historic city of Lincoln is fast approaching. The event is one of the largest gatherings of Alphas and their families in the UK where you can meet and socialise with fellow Alphas and be updated by leading experts in the field of Alpha-1 Antitrypsin Deficiency.

It is a great time to catch up with old friends and meet new, it helps to put faces to names and gives you the opportunity to talk to many others who are in the same situation as you. The day is very informal and EVERYONE is welcome, wife's, partners, husbands, children, family members and any friends who might be interested, so if you have not yet booked your main contact for registration, hotel rooms etc is:

John L Mugford - infoalpha1uk@googlemail.com
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Latest News

ERS to Honor Alpha-1 Researcher Robert Stockley
28 Aug 2014 20:50

European Respiratory Society to honor longtime UK Alpha-1 researcher Robert Stockley The European Respiratory Society will honor Robert Stockley, MD, with its Presidential Award at the 14 ERS Int [ ... ]

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Alpha-1 Global Launches Website
27 Aug 2014 18:33

Alpha-1 Global launches website, linking Alphas worldwide
Today marks an exciting milestone for the Alpha-1 community worldwide: The Alpha-1 Global website alpha-1global.org is up and running.
The s [ ... ]

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Update Review Specialised Service Commissioning
15 Aug 2014 19:17

Minister gives update on review of Specialised Service Commissioning In April, NHS England established a specialised task force to make some immediate improvements to the commissioning of specialised [ ... ]

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Specialised Alpha-1 Service Endorsed by CRG
21 Jul 2014 18:44

Alpha-1 Alliance’s application for highly specialised Alpha-1 service endorsed by Clinical Reference Group
The Alpha-1 Alliance is delighted to announce that the Clinical Reference Group (CRG) for  [ ... ]

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Alpha-1 Alliance Secures Clinical Expert Support
21 Jul 2014 18:32

Alpha-1 Alliance secures wide clinical expert support for a national service at Advisory Board

Yesterday, the Alpha-1 Alliance brought together clinical experts specialising in Alpha-1 and Alpha-1 pati [ ... ]

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Minister answers Parliamentary Question on A1AD
12 Jun 2014 19:27

Minister answers Parliamentary Question on Alpha-1 Antitrypsin Deficiency - In May, the Alpha-1 Alliance met with Peter Aldous, Conservative MP for Waveney, to discuss the unmet medical need of patien [ ... ]

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