Alpha-1 Antitrypsin Deficiency also known as Alpha-1, A1AD or AATD is an inherited, genetic condition that is passed on from generation to generation. As the name suggests it is a deficiency of alpha-1 antitrypsin (AAT) in the bloodstream. AAT is an enzyme produced in the liver to help protect the tissues of the body during infections. The low level of AAT in the blood occurs because the AAT is abnormal and cannot be released from the liver at the normal rate. This leads to a build up of abnormal AAT in the liver that can cause liver disease and a decrease of AAT in the blood that can lead to lung disease.
Our dear Linda Cooke sadly passed away peacefully with her son Andrew, daughter Helen and her best friend Bev by her side on Thursday 21st January 2016. There are special people in our lives who never leave us even after they are gone, Linda is without doubt one of those special people who will always be forever in our hearts, we will miss you.
Here is Linda's Story..........
Linda was Trustee of the Alpha-1 UK Support Group and always there, in person, on the end of the phone, by email and Facebook, to offer support and friendship to all who came within her sphere, no matter what walk of life they were from and no matter how ill, she herself was feeling….
Linda was always one of the first to welcome new members, who often had just been diagnosed, and had found the Alpha-1 UK Support Group whilst researching Alpha 1 on the internet. She would offer words of comfort, support and encouragement and somehow she always knew what to say to alleviate their fears of this little known illness. When a member was listed for a transplant, she would offer them love and support, and when they were lucky enough to get “the call” she was there to support their family through this difficult time.
But it wasn’t just within the Alpha 1 community that she was like this. To all her family and friends-, she was a tower of strength, always there for them. Your problem was her problem, she would laugh with you, cry with you, celebrate your successes and give support in times of need.