email forum - by joining the group e-mail forum you will be in contact with Alpha patients, their families, carers and friends living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

What is Alpha-1 Antitrypsin Deficiency?

Alpha-1 Antitrypsin Deficiency also known as Alpha-1, A1AD or AATD is an inherited, genetic condition that is passed on from generation to generation. As the name suggests it is a deficiency of alpha-1 antitrypsin (AAT) in the bloodstream. AAT is an enzyme produced in the liver to help protect the tissues of the body during infections. The low level of AAT in the blood occurs because the AAT is abnormal and cannot be released from the liver at the normal rate. This leads to a build up of abnormal AAT in the liver that can cause liver disease and a decrease of AAT in the blood that can lead to lung disease.

Newsletter Autumn 2014

Autumn 2014 Alpha-1 UK Support Group Newsletter
Now Available

24 pages full of News, Information and Members Stories including: Alpha-1 Alliance Campaign Update, Future of ADAPT, Alpha-1 Foundation US Merger, Hello from Australia and Much More. We hope you enjoy it.

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To request a free Alpha-1 Information Pack or Booklets and Posters for your GP Surgery and Hospital please e-mail us with your full name and address.
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Latest News

Scottish Alpha-1 patients – the campaign needs you...
01 Oct 2014 16:27

Alpha-1 Alliance hosts seminar on Alpha-1 at the Scottish Parliament on 19th November The Alpha-1 Alliance warmly invites Scottish Alpha-1 patients and their family members to attend our Parliamen [ ... ]

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Highland Climber Signs Up In Capital
15 Sep 2014 09:59

A Highland mother-of-five with just 24% lung capacity has climbed a steep rock face at Edinburgh Castle to place a huge Yes sign in full view of thousands of people.

Climber Lindsay Jarrett, 42, of Kin [ ... ]

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Government Consider Alpha-1 NHS national service
03 Sep 2014 09:13

Government committee to consider Alliance application for Alpha-1 NHS national service The establishment of an NHS national service for the treatment of Alpha-1 could move a step closer this month wh [ ... ]

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ERS to Honor Alpha-1 Researcher Robert Stockley
28 Aug 2014 20:50

European Respiratory Society to honor longtime UK Alpha-1 researcher Robert Stockley The European Respiratory Society will honor Robert Stockley, MD, with its Presidential Award at the 14 ERS Int [ ... ]

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Alpha-1 Global Launches Website
27 Aug 2014 18:33

Alpha-1 Global launches website, linking Alphas worldwide
Today marks an exciting milestone for the Alpha-1 community worldwide: The Alpha-1 Global website is up and running.
The s [ ... ]

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Update Review Specialised Service Commissioning
15 Aug 2014 19:17

Minister gives update on review of Specialised Service Commissioning In April, NHS England established a specialised task force to make some immediate improvements to the commissioning of specialised [ ... ]

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